|
These articles are relevant to the organisation and running of parent groups. Some of them address issues faced by many parent organisations, while others are comments on the experiences of various groups. It is hoped that this body of articles will be added to, to share and enhance the experiences and expertise of parent groups around the world. |
|
Title |
Author | Date | |
| Characteristics of National-Level Parent Associations | Mark Chesler | 1997 | Go |
| A Parents’ Group Experience: Learning to communicate | Pia Bonini | 1998 | Go |
|
Are national coalitions possible between support groups for parents of children with cancer and cancer associations? |
Mark Chesler | 1999 | Go |
|
Effective Communication within support groups |
Nel Warnars -Kleverlaan | 1999 | Go |
| Educational Meetings | ICCCPO Workshop | 1999 | Go |
| Some key strategies for the recruitment of new members for your group | ICCCPO Workshop | 1999 | Go |
| Public relations: what can be gained? | ICCCPO Workshop | 1999 | Go |
| Production of a brochure: some points of interest | ICCCPO Workshop | 1999 | Go |
| Family Issues: How can a support group deal with the problems experienced by mothers, siblings, adolescents and grandparents? | ICCCPO Workshop | 1999 | Go |
| How to Start a Newsletter? | ICCCPO Workshop | 1999 | Go |
| How to make a Poster? | ICCCPO Workshop | 1999 | Go |
| How to maintain a Support Group? | ICCCPO Workshop | 1999 | Go |
|
How to promote your support group and its programs |
Laura Lee Liebermann |
1999 | Go |
| News release guidelines |
ICCCPO Workshop | 1999 | Go |
|
Initiation of a Parents' Organization in a Developing Country |
SIOP Workshop |
2001 |
|
| What
do parent groups/organizations do…and how do they do it? |
Mark Chesler | 2001 | Go |
| Research for the future | Karin Wandrell (Sweden) | 2003 | Go |
|
Organisation Issues and Models for Childhood Cancer Parent Groups |
Julian Cutland (SA) & Simon Lala (NZ) | 2003 | Go |
|
Group Development in Developing Countries |
Aaradhna Mittal (India) |
2004 | Go |
| How to establish a mentoring program in your home country | Eva-Maria Casata (Austria) and Dorothee Schmid (Germany) | 2007 | Go |
Workshop presentations - 2005; 2006; 2007
At the Vancouver Conference in Sept 2005, Geneva in 2006, and Mumbai in 2007 we were forunate to have workshops on topics of great relevance to running parent groups. The presenters have kindly agreed to make their material available on this site.
| Author | Title | Links |
|
Mike Mackay |
Priority Setting, Benchmarking and Evaluation. Word document with content of PowerPoint presentation. |
|
|
Barb Smeltzer |
Volunteer Management. Word document with content of PowerPoint presentation. |
|
|
Joana Ramos |
Fundraising for your group in developing countries. Word document includes appendices with a bibliography and listing of resources. The PowerPoint presentation is also available. |
|
|
David Stones |
Marketing and Branding your Organisation Word document with content of PowerPoint presentation. Hands-outs from the workshop are attached as appendices. |
|
| Julian Cutland & others |
Continuity, Transition and Governance in Parent Groups Write up based on the presentations. |
|
| Val Figliuzzi |
Grant Writing Tips and checklist (Word document) Detailed guidelines are also available from Val - see the tips document. |
|
| John Spinetta |
Parent Mentoring Some brief guidelines for parents mentoring and talking to other parents. |
|
| N Eschmann |
Media & PR: Twins, enemies, or both?
|
To come |
| Jim Barclay |
Lobbying: Talking with Government and other agencies |
Word Doc |