ICCCPO Newsletter 1999 - No 1 Spring 1999 |
Index |
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Editors' note |
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| For contact details of the ICCCPO Executive Committee, click here | |
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Articles in the original newsletter that are now separate |
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Title |
Author |
Link |
| How to make a poster | Pia Bonini | Go |
| Guidelines for assistance to terminally ill children with cancer | SIOP Working Committee | Go |
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Team approach to the immuno-compromised child |
Sadie Cutland | Go |
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Short term intensive support groups for mothers who have lost a child to cancer |
Saiki-Craighill, S. | Go |
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"Achtung, jetzt komm' ich !", a program for siblings |
Bernd Mirbach and Markus Hladic | Go |
| Groups present themselves at Frankfurt 1998 | Gerlind Bode | Go |
| P.A.V.E.L., the parents
association of Rumania |
Olga Hamagi | Go |
First of all we wish you a very happy New Year! On the eve of a new millenium ICCCPO is entering into a closer relationship with the International Society of Pediatric Oncology (SIOP). The Executive Committee and the SIOP board will discuss future plans and how to develop a more intensive co-operation at the next board meeting in London. The 31st SIOP Meeting in Montreal, Canada, where ICCCPO will hold its General Assembly Meeting, will offer a parent meeting but also some combined sessions. It promises to be a very exciting meeting and we are looking forward to meeting you again or to welcoming you for the very first time. You can read the provisional program elsewhere in this newsletter. We also invite you to present one of your successful projects by means of a poster - an excellent way to exchange information. How to make a poster and how to write an abstract is explained in the guidelines elsewhere in this newsletter.
This newsletter contains some interesting articles. At the General Assembly Meeting in Frankfurt all attendants were asked to introduce their organizations on a big sheet. The text of those sheets are partly published in this newsletter, the rest will be printed in the next number. Also from the Frankfurt meeting is the article about a very special program for siblings. We print the SIOP psychosocial guidelines for the care of terminally ill children - ICCCPO attended the workshop where these guidelines were drafted -, and a lecture from the parent meeting at the SIOP in Yokohama about support for bereaved mothers. The care of children with cancer needs a multidisciplinary approach were parents are part of the team. An article about team approach emphasizes that.
And again we ask you: please share your experiences, your programs, your successes, and failures with other organizations by means of this newsletter. Don't let the language be a barrier - only some of us are native English speaking. So send us your articles by mail (if possible on diskette) or e-mail! We can learn so much from one another!
Last but nor least, we are very glad that Pia Bonini, former treasurer of ICCPO, has joined our small editorial staff.
Marianne Naafs-Wilstra
Gerlind Bode
Pia Bonini
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