Fundacion Natali Dafne Flexer. Buenes Aires, Argentina
Presentation at ICCCPO Meeting in Luxembourg, Sept. 2001
Founded and launched operations in 1994
Started with a budget of US$12,000
original staff: 2 founders and 1 volunteer
Exclusive focus on editing and publishing pediatric cancer information booklets
25 families
Annual budget of over US$ 100,000
7 permanent staff and over 60 volunteers
New house: play centre for children and attention center for parents
500 families
High degree of economic activity, concentration in Buenos Aires area (50%)
High unemployment rates since 1995 (above 15%)
Migration from other states to Buenos Aires
Illegal immigration from neighbor countries to Buenos Aires
Long distances
Fragmented health care system
Childhood cancer treatment only available in main urban centres (Buenos Aires, Cordoba, Mendoza)
National law enforces free delivery of chemotherapeutic agents only.
Information and Education
Emotional Support
Social Support
Recreation and Entertainment
Communication
Recruiting of Volunteers
Free distribution of booklets to all institutions, professionals and people involved with pediatric cancer patients.
Workshops for teachers and students to inform them about cancer, to enhance children's acceptance of their suffering and to reduce the sense of isolation imposed by cancer.
Consulting to develop emotional and social support programs in hospitals of other states of the country.
Scholarships for nurses.
Before we started our project, no printed information related to the childhood cancer was available to the general public
More than 55,000 books have been distributed free all over the country
Main distribution channels are hospitals and our institution
Up to now, 13 different titles have been published
Consulting about community resources, such as free public transportation, state grants, etc.
Sharing information and ways to deal with common problems
Gathering of specific drugs and cancer treatment devices (wheelchairs, catheter, cellular phones)
Emergency Fund
Advocating for families in legal and health security issues
Development of a blood and platelet donor database.
Basic needs.
Adapt the current organization to the pattern of the increasing demand
Improve efficiency of current operations
Improve the quality of the relationship between our organisation and health and government institutions
Integrate with international organisation.
Visit us at: www.fundacionflexer.org