Childhood cancer parent associations are all very different in their organisation, none is
the same. As an illustration we give the characteristics of 24 national-level parent
associations as collected by our chairman, Mark Chesler.
Date of formation
Before 1985 8 Between 1985-1989 6 Since 1990 10
Size of National Governing Board
Less than 10 12 Ten and more 8 Unknown 4
Percent of Board members who are parents of children with cancer
Under 75% 1 Between 75%-99% 5 100% 15 Unknown 3
Number of times Board meets /year
Two times 4 Between 3-6 4 Between 7-12 12 Unknown 4
Number of local/regional "chapters"
Only 1 8 Between 2-10 8 Between 11-50 6 Over 50 1 Unknown 1
Annual budget
Less than $50.000 US 12 $50.000-$500.000 6 More than $500.000 3 Unknown 3
Sources of funds raised (can be multiple)
Individual member fees/dues 5 Local group fees/dues 2 Public donations 16 Government subsidies 4 Cancer association subsidies 2 Sales of items (cards, shirts) 5 Corporate/foundation grants 6 Unknown 4
Existence of paid staff members
No 5 Yes, 1-2 10 Yes, more than 2 6 Unknown 3